A relatively quiet, uneventful week here in our home--at least as far as Grace's condition goes. The rest of our life was it's standard, chaotic state. Grace did not have an infusion this week, which was nice. I gave her an injection of methotrexate here at home, which was traumatic for her, but we got it done. This Thursday will be her next infusion at Children's.
I also found a First Communion dress for her! (Actually, my mom did. She is THE BEST at hunting clearance racks and finding bargains.) I have bought/borrowed two dresses for Grace, but because of the weight gain caused by the steroids, neither of them fits anymore. Understandably, I didn't want to spend alot on yet another dress, but my mom found one that will work perfectly!
I thought you might enjoy seeing a couple of updated pictures. The first one shows the lesion--you can see that it is less inflamed and that the color has faded to a more greenish/yellowish color. The surface of it is also much more smooth and less "stretched" looking for lack of a better description. The second one shows that Grace has gained a bit of weight--you can see it in the fullness of the face. However, she still has a great smile--when she chooses to show it!
The dermatologist we met with last week did say that the hair loss is likely permanent, which is too bad, but not unexpected. The above picture does not really show the area, as Grace is pretty self concsious about it. She also mentioned that plastic surgery would be an option to consider when she is a little older. Obviously, that is not something we will consider while she is still growing.I'd like to take a moment to wish my mom a very happy Mother's Day--I hope it is a fabulous one. And to all the other mothers reading this post, I hope your day is a great one as well!
Thank you for your continued thoughts and prayers.
Sabrina
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