Today's 2nd infusion is history! Grace did very well today, simply averting her eyes when they started the IV line, and taking everything like a trooper. Because of my pretty bad cold, we had to be in isolation while in the infusion unit. The poor nurse had to put on a gown, mask and gloves everytime she came in. This was done to protect the other children in the unit who are severely immuno-compromised. We were out of there in about 3 hours today--not bad!
Today's side effects have been a little more problematic. Thankfully, no nausea, but Grace is pretty agitated and irritable. She is finding it difficult to sit still for any length of time, and is pretty emotional.
I spoke with our school district nurse this morning, and we now have a plan in place for Grace on the day she returns to school after treatment. Last week, she made it through a couple of hours, and then was in the health room complaining of a headache. With this new plan, she will be allowed to relax in the health room, drink some water, have a snack and take some Advil if needed. She can then return to class if she feels like it. She will also be given more leniency for snacking/drinking in the classroom if absolutely necessary. In addition, because her immune system is suppressed, the district will notify us in the case of an outbreak of any communicable diseases such as chicken pox or strep throat.
Over all, this is becoming more routine. We meet with her rheumatologist on Monday, so we should have some more information on the length of treatments, etc. at that time.
That's tonight's update. I am now off to drink some TheraFlu and go to bed. Rob is also pretty sick--in fact he's worse than me. We are so thankful for the delicious dinner brought to us tonight!
Thanks for all your positive thoughts,
Sabrina
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