This week's update

Grace got to take the day off today from going to Children's Hospital. The timing was perfect, because her class had a field trip to the Woodland Park Zoo today, and she would not have been able to go if we'd gone for the infusion.

Tonight I administered the first methotrexate injection at home. (We've had MTX in the infusion center, but this is the first one I did at home.) Grace was a little bit scared, but I did great (if I do say so myself!) and the whole thing was over in less than a minute. The first one is behind us, and it is always the hardest.

Next week we go back to the infusion unit at Children's. However, we will be going on Wednesday intstead of Thursday so that Grace can go with her Brownie troop to the Encampment weekend. After that, we'll see what our schedule is.

Grace has an appointment with a top pediatric dermatologist in Bellevue next week. (She is impossible to get into, and is only doing this as a favor to the first dermatologist we saw in February. ) I'm not sure what--if anything--will come out of this appointment. She might give us some ideas of what we can do to minimize the appearance of the lesion. I will also talk to her about the area of hair loss, and if there is anything that can be done about that. I've read that the hair loss is permanent, but who knows?

Grace is doing well. As of this week, she has gained about 6 pounds, but it really doesn't show all that much, and she is thrilled about the new clothes she has gotten out of this! I am in search of a new First Communion dress for her, however, since the one I bought her no longer fits. Good thing I've got until June 8 to find one!

That's about all for tonight's update. Thank you so much for reading.